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Rosalie Martin

Team Total Total Raised

$565 of AUD $5,000 team's target.

Raised by 0 people in days for Foundation for Angelman Syndrome and Therapeutics Australia Limited

Biggest Supporters

AUD $200.00

Chedene Broderick

AUD $100.00

Lynne Abbott

WINGS FOR TYNAN

Story

we will be taking part in the Brisbane Marathon Festival 2018 to   raise awareness for Angelman Syndrome.

 

We have chosen F.A.S.T. ( Foundation for Angelman Syndrome Theraupitcs Australia) as our charity; they are an organisation dedicated to improving the quality of life for families and individuals living with this rare disease and hopefully one day there will be a cure!

 

Rosalie and Chris's son Tynan has Angelman Syndrome, Angelman Syndrome (AS) is a rare neuro-genetic disorder affecting about 1 in 20,000 people. It is characterized by severe intellectual impairment, lack of speech, seizures, severe sleep disturbance, movement and balance issues, and numerous other features. 

 

" Living with AS brings some hurdles most of you will not encounter, such as having a conversation with your child- we may never be able to verbally converse with tynan without the need of communication aids etc. 

He is a smart little boy who is so loved by everyone he meets. He brings joy and mischief to our lives. But it is a dream for us one day he may be able to verbally talk with us

 

This August, we are going to be sweating it out and doing our best to complete a gruelling course, but in doing so  we will be making our run count! We are honoured to be a part of this amazing race and helping a great cause, and really appreciate your support in this endeavour. 

 

ALL donations you give go directly to charity, so click on DONATE NOW!

 

Thank you for your support and helping to make a difference!

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WINGS FOR TYNAN

AUD $565 of AUD $5,000 target

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          Foundation for Angelman Syndrome and Therapeutics Australia Limited

          The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organisation of families and
          professionals dedicated to finding a cure for the rare condition, Angelman Syndrome and related disorders
          through the funding of an aggressive research agenda, education, and advocacy. The Foundation is committed to
          assisting individuals living with Angelman Syndrome to realise their full potential and quality of life.

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          Created by

          Rosalie Martin

          for Foundation for Angelman Syndrome and Therapeutics Australia Limited

          Fundraising for

          is simply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry's standard dummy text ever since the 1500s.

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          Rosalie Martin's Total Team Totals

          AUD $565 of AUD$2,500 target

          0 people in days

          AUD $565 of AUD$5,000 target

          0 people in days